A Clubfoot & Hip Dysplasia Journey: Ellie Kate


 

July 14, 2016 was one of the best days of my life!  This was the day I found out I was being blessed with another child after 18 months of trying. Fast forward to November. My husband and I were at my 20 week sonogram. I knew what to expect since this was my second child, or at least I thought I knew. This is the appointment when we found out our daughter might have clubfeet. We went to have a level 2 sonogram in Shreveport, LA; her clubfeet were confirmed, but several other concerns were ruled out.

We met our precious daughter on March 15, 2017! Her clubfeet were the most beautiful thing I've ever seen. I loved watching here cuddle herself with her tiny feet! Her clubfoot journey was a little delayed due to being in the NICU for 5 weeks at Children's Medical in Dallas. While we were there they questioned her hips; they recommended having her hips checked when we started her feet.

On April 24th we went to Texas Scottish Rite in Dallas to finally begin her journey! It wasn't until we went for her 3rd casts that we found out about her hips. Her hips had quite a ways to go; they were dislocated. Ellie Kate was put in a Pavlik Harness that day. Her doctor told us that he hasn't had a patient that had both clubfoot and hip dysplasia, but he would like to try and treat them at the same time. He has been consulting with a friend/partner at Scottish Rite that has done wonders with hips, and they have been discussing plans for our daughter throughout this whole process. She stayed in the harness 24/7 for 2 weeks, and had an ultrasound at each casting appointment. She was making progress, slowly but surely! At her appointment for the tenotomy, we were told we could take her harness off long enough for a sponge bath and onesie change. Her doctor told us he wanted to try something with her that would allow him to continue to work on both her hips and feet at the same time. We were assured that if it didn't seem affective they would stop and try something else.  

Ellie Kate had her last casts taken off on June 23rd. She had another ultrasound on her hips that showed great improvement! Her right hip still has some work to do, so she will stay in the Pavlik harness. We spent over an hour on the orthopedic floor getting Ellie Kate's bent knee KAFO's made. She has a very unique KAFO; it's so unique that there's not an official name for it yet! She is wearing the Ponseti boots that have an attachment on them. This attachment connects the boots to her KAFO. Her "contraption" as I call it is set up to allow her to still wear the Pavlik Harness. Her entire set up can come off 2-3 times a day for 30 minutes. I have been keeping an extremely close eye on her in fear of relapse, but her adorable feet still look amazing! We go back on the 10th for another ultrasound, and for the team to take a look at her feet.


I am very hopeful that this will work, and that it's the best option for our daughter. We are beyond pleased with our doctor and the rest of the team. The doctor's excitement and determination to get both her hips and feet treated at the same time is evident. I am excited to share any and all updates and progress!